Tag Archives: compression garment

A Snow Day….for Your Legs!

24 Jan
Freedom

Little me enjoying the white stuff after the Blizzard of ’79. Now THAT was a snow day.

Thanks to Winter Storm Jonas and the nearly 30” of snow he left in his wake, I and millions of others along the east coast have been holed up in our homes for 36 hours and counting.  

With nowhere to go and a new book awaiting me on my Kindle, I decided to give my legs a snow day too.  No compression stockings.  Bare legged.  A break from the normal 16 hours a day spent cooped up in tight, thick nylon-spandex, from toes to tummy.

What a glorious day!  Toes wiggling.  Thighs rubbing against cozy Cuddl Duds softness.  No pinching, pulling, or squeezing. Freedom!

Don’t wait for a “Snowmaggedon” to give your legs a day off.  If you are able, try letting  them “air out” for a day, a day of freedom, while still maintaining lymphatic flow.

Some suggestions:

  • Take a load off.  Limit the time you spend standing.  Keep your legs elevated above your heart as much as possible.  The natural effect of gravity will facilitate lymphatic flow.  When cooking and preparing meals, try sitting on a stool or chair.  Logically, spending significant time on your feet without compression is not recommended.

  • College Living Essentials Zero Gravity Perfect ChairKick your feet up.  Literally.  Find a chair that lifts your legs up while taking pressure off of your back.  Watch a movie or read a book while compression-stocking-free.

  • Hydrate your legs.   Pampering your skin is a luxury you don’t have while confined to compression stockings; so take advantage of this time.  Every few hours, apply lotion to your legs, working it in with upward strokes to encourage lymphatic flow.  And don’t forget your feet!  I recommend Eucerin Smoothing Repair for Dry Skin or Medi Night Creme.

  • sock2Wear cozy socks.  Let your feet experience what normal feet do – the luxury of soft fabric directly against the skin.  Choose a style of sock that does not bind at the top, cutting off lymphatic flow.  Diabetic socks are made with this in mind.  Non-binding socks made by Sockwell (pictured right), Soft Fit and Softop are available through Footsmart.com or Amazon.

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Tip #6: For Women Only — Lymphedema and Yeast Infections

28 May

Although June 21st is the calendar start of summer, Memorial Day (in America) marks the unofficial start. For the average person, the season means fun, sun and sandals.  For those of us with lymphedema, it can mean swelling, sweat, and praying for September to come early.

When you are a lymphie, heat is a four letter word.

Putting on and then wearing thick, tight compression stockings all day, every day is challenging enough.  Add eighty-plus-degree-heat and a bucket of humidity, and we are ready to volunteer for the crew of ‘Ultimate Survival Alaska.’

For women (like me) who must wear full-pantyhose compression stockings, the most unpleasant hazard of the summer heat can be yeast infections.

Yeast infections are not listed as a side-effect on stocking product materials.  Neither is your regular doctor likely to warn you about them, because (GROAN) the medical profession lacks focus and funding on our field of study.

Yet I assure you, yeast infections and pantyhose compression stockings go hand-in-hand.  Yeast thrives in warm, moist places, causing a fungal infection resulting in itching, redness, swelling, burning and a discharge that looks like cottage cheese.  Summer fun, it is not.

So what can you do to avoid developing this uncomfortable medical condition on top of an already uncomfortable medical condition?

  • Go crotchless.  
    Juzo Soft with Open Crotch

    Juzo’s Soft open crotch compression stockings (no, this is not a picture of me!)

    Victoria isn’t the only one who knows this secret. Some manufacturers, for an extra fee, can remove the crotch from stockings.  Juzo offers this as a regular option in their Soft product line.  Unless Dr. Ruth is on the board of Juzo, one would surmise there was a medical function to this design.

An open crotch promotes a cool, dry and airy — how shall we say….”environment.”  Don’t negate these positive effects by wearing tight pants or synthetic panties.  In hot and humid weather, skirts and cotton panties (or none!) are the way to go.  In addition, be sure to change out of wet swimsuits and gym clothes immediately after a workout.

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Tip #5: How Many Compression Stockings Should You Purchase?

29 Mar

If you have been following my recent tips, then you know where to buy compression stockings, what to look for in a stocking dealer and which kind of stockings are right for you.  Once you are ready to make the purchase, it is time to decide how many stockings to buy.

If you are like me and come from the shopping school of “When you find something that works, buy it in every color,” you may have to adjust your purchasing habits.  Compression stockings are expensive and they do not last forever.

Stockings are meant to be worn, washed and worn again.  If they linger too long in your dirty clothes basket, the fibers begin to deteriorate.  But a life of coming home from work and doing laundry every day is pretty depressing – and not always possible.

So the number of stockings you purchase depends on your budget limitations as well as your lifestyle preferences.

Here are five stocking lifestyle profiles.  See which one fits your budget and lifestyle the best.

One pair of stockings can get awfully lonely.

One pair of stockings can get awfully lonely.

#1 The Optimist
If you have the time (and inclination) to wash stockings every night, then potentially you could buy just one pair.  But I wouldn’t recommend it.  Having only one pair of stockings leaves little drying time after washing – and zero room for error should your stockings get damaged.

ObsessiveCompulsive

Here are a few pairs of my stockings at rest on my drying rack. If you own only a few stockings, be prepared to stick to a regular washing schedule.

#2 The Obsessive Compulsive
The minimum number of stockings I recommend is three.  Two of the three pairs are for regular wear (interchangeably every other day).  The third is to be kept as a spare and worn only in case of emergency.  An emergency is when one of the first two have been damaged and are no longer wearable.  An emergency is not when you are too tired to launder the other two pairs.  Beware that having only two pairs of stockings in the rotation means you have to stick to a daily or every-other-day washing routine.

This is me a couple of years ago, after running a 5k. It sure was nice (for me and everyone else) to have a clean pair of stockings to change into.

This is me a couple of years ago, after running a 5k. It sure was nice (for me and everyone else around me) to have a clean pair of stockings to change into.

#3 The Athlete
If you are very physically active, consider buying four pairs.  Two for regular wear, one for exercising and one for emergency use only.  With the exception of swimming, all exercise should be performed while wearing compression stockings.  If you can afford the expense, then you will enjoy the convenience of having a fresh pair of stockings to change into after going for a run or taking in a yoga class.

Fashionista

Once, I branched out from beige/black and tried a “platinum” colored stocking (pictured). I felt like an extra in the movie Avatar. Don’t let that deter you. Pursue your inner Stocking Fashionista.

#4 The Fashionista
Beige can get old real fast.  Luckily, stocking vendors have caught on and now offer garments in a variety of shades.  If you want to add color to your legs, then factor that into your budget.  I get a lot of use out of black stockings during the winter, in addition to beige-colored stockings.  That means I order about twice as many stockings in the cold months as I do in the warmer weather.

The Hoarder

While this overflowing drawer of stockings may look like compression stocking heaven, resist temptation. Don’t hoard.

#5 The Hoarder:  Ordering in Bulk
I’ve had a recurring nightmare about my favorite compression stockings being discontinued.  I wake up in a cold sweat, refreshing Juzo’s product website until I fall back asleep.  If you win the lottery, you might be tempted to stock up on your stockings.  Resist.  For two reasons.

One, stocking return policies usually extend only 30-to-90 days from the date of purchase.  If you crack open a pair that you have been hoarding for six months and discover an issue with the fit or have some other issue, you may have difficulty securing a replacement or refund.

Two, compression stocking technology is constantly improving.  The style you are in love with now might be even better in a year’s time.  The stockings I first donned in 1998 feel like sandpaper compared to the updated version I wear today.  Over time, improvements are made to just about every aspect of the garment.

Earlier this year, Juzo made a change to the waistband of the Soft garment I wear.  No more bulky elastic to thread through the waistband.  Now it’s smooth and fitting.  More comfortable and less conspicuous under clothing.  If I loaded up on Softs, I’d be kicking myself for not being able to enjoy the new model.

 For those of us with lymphedema, compression shopping lacks the fun and spontaneity of regular shopping. Our choices involve more than color and style; our choices directly affect our comfort and health. Making informed purchases of compression stockings should help to eliminate financial or emotional “buyer’s remorse.”

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Tip #4 The Goldilocks of Compression-wear: How to Know Which Stockings are Juuust Right for You

22 Mar

StockingsThis stocking’s too tight.  This one’s too loose.  This one’s juuust right.  Sometimes searching for the right compression stocking can make me feel like Goldilocks.  But finding a stocking that fits well, looks decent and prevents swelling is no fairy tale.  It is possible.

First, you have to learn how to recognize the feel of a good compression stocking fit.  Compression stockings are designed to improve the way the body feels (and operates).  They should make you feel better, not worse.  My happiest days of the year are the days I crack open a new pair of compression stockings.

So what do I feel, when I pull on a pair of stockings that are juuust right?

Relief. Lighter-weight. Energized.

Over the years, I have ordered plenty of stockings that are not right for one reason or other.  These are some of the feelings I experienced, when trying on stockings that were not the right match for me: Continue reading

Compression Stocking Tip #3: The “Four P’s” of Choosing a Compression Stocking Dealer

1 Feb

HandshakeCompression stockings squeeze you enough.  Your stocking dealer shouldn’t squeeze you as well.  So, how do you choose a business that will provide you with products at a fair price with good service that you can count on?

When choosing a compression stocking dealer, always remember -you are a consumer, not a patient.  Stockings are a product – an expensive product – and you are a consumer paying money (usually a lot of money) for goods.  You deserve courtesy and satisfaction in your purchasing experience.

I encourage you, as a consumer, to look for the “Four P’s,” when checking out a new compression stocking dealer. Continue reading

LD Compression Stocking Tip #1: Use the Floor

5 Jan

Like many people with lymphedema, when I was first diagnosed, I was told to wear compression stockings every waking hour for the rest of my life.  But I wasn’t told anything else about compression stockings.  This video kicks off a featured blog series of compression stocking survival tips called, “A Leg Up: Compression Stocking Tips – What the Doctors Don’t Tell You.”  Throughout the series, I will share information that I wish I had been told the day I was diagnosed.

Get a leg up on your lymphedema – click below to watch or read the transcript that follows.  Please share, comment and sign up for email alerts, so you don’t miss any future tips.  My next tip will be on “Where to Buy Compression Stockings.”

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Mani/Pedi-mania: lymphedema nail care

8 Sep
Manicure

My manicurist, Ligia, painting within the lines much better than I could ever do. Yes, I took this photo with one hand.

Every Sunday afternoon I treat myself to a manicure. Sure, it helps keep me from snagging my compression stockings by maintaining well-groomed nails. But I’m also more Jackson Pollock than DaVinci with polish, so it’s best left to the professionals. Besides, the hot towel and hand massage are the real joy anyway.

As for my pedicure needs, however, I’m on my own. Aside from my innate aversion to showing my feet in public (that pre-dates lymphedema) and my highly ticklish nature, getting a pedi is something to be highly cautious about for those of us with leg lymphedema.

Here’s why a pedicure isn’t worth it for me: Continue reading

Managing Lymph-tivities

3 Sep

Idina MenzelFor most women, getting ready for work is like preparing for opening night on the Broadway stage. All of the makeup, hair and costume acrobatics performed on a daily basis before 7 a.m. would give even Idina Menzel pause.

For women with lymphedema, getting assembled for the day is even more challenging. Our routines include more than the application of foundation, blush, mascara and hairspray.

What are among the most common activities for lymphedema ladies? Remove compression bandages (5 minutes), roll up compression bandages (10 minutes), shower/dry-off/moisturize/elevate legs (30 minutes), conduct manual lymph drainage (20 minutes), don compression garment or garments (15 minutes), choose the least restrictive ensemble for the day – from the feet up (10 minutes). With all of these added lymph-tivities, it is a wonder anyone with this condition ever makes it out the door!

As a working professional who has been living with lymphedema for 16 years, I am continually looking for more efficient ways to manage my health situation. One lymph-tivity that I have eliminated from my morning routine, saving me valuable time: morning shower and post-shower leg elevation. Continue reading

Sex and Lymphedema

9 Oct

Randy GlasbergenThe first time my husband Luke and I became intimate, he didn’t know I had lymphedema.  Since the swelling in my legs is mild, it’s not something he would have easily noticed (especially since he was quite distracted!).

Funny, it wasn’t the lymphedema as much as the compression stockings that I wasn’t ready to share with him. Laying naked in bed baring your body’s imperfections, even if it is a foot or arm that is fatter than the other, is beautiful – that’s what intimacy is all about.  But for someone with lymphedema, getting to that state can feel less than sexy.  There was no Dance of the Seven Veils for Luke.

In the movies, when they get hot and heavy, they don’t do a closeup to reveal the ingenue’s compression garments and watch while she takes a time-out to strenuously remove them.  And that’s not a scene I wanted to play out either.  At some point when we were getting close, I excused myself to the bathroom, yanked off my stockings, put my clothes back on and rejoined Luke.

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I’m so progressive (medically, that is)

12 Aug

When the medical professionals say that lymphedema is a progressive disease, they aren’t kidding.  In the 15 years that I’ve had the condition, the development of my lymphedema can be tracked by the compression garments I have worn to manage it.

"The Grandma", as I call it, in Juzo's advertisement

“The Grandma” compression stocking, as I call it, as pictured in Juzo brand’s advertisement.

Compression garments are stockings or sleeves or some other type of clothing that provide gradual compression that pushes the lymphatic fluid towards the heart (meaning the garment is tightest at the bottom of the limb, i.e. the ankle or wrist,and loosest at the top of the limb).

Some lymphedema patients can’t fit into compression stockings due to the severity of their swelling.  I don’t know how they can function or bear the pain.  For myself, I cannot remain in a standing position for more than a few minutes without my stockings on before I start feeling discomfort.  Within a matter of hours swelling would follow and my legs would be back to day one of my onset.  Without stockings, I could not function day-to-day.  I could not go to work, go for a walk, or do any of the necessary and normal activities of life.  These stockings do the work that my lymphatic system is incapable of doing.

So over the past 15 years, I’ve gone from a school-girl knee-high stocking, to a sexy thigh-high length, to a full pantyhose style that extends past my belly button that I have dubbed “The Grandma.”

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