Archive | News RSS feed for this section

Treatment Funds the Cure: BrightLife Direct and Lymphedema Diary Team Up for LE&RN in Celebration of Lymphedema Awareness Month

2 Mar

What if I told you that your purchase of compression garments could help the fight to end lymphatic disease and lymphedema?  Well, THROUGHOUT THE MONTH OF MARCH, it will.

When you buy your garments from BrightLife Direct during March 2015, one percent of the total purchase price (on all orders that include the coupon code DONATE) will be donated to the Lymphatic Education and Research Network (LE&ARN).
BrightLife-Direct-Products

Why during the month of March?
March is Lymphedema Awareness month.  That means it’s our time to shine — all 100 million of us worldwide who suffer from lymphedema.  It is our moment to collectively raise our voices and demand funding for research to find a cure, adequate insurance coverage for medical treatment (including for compression garments) and full engagement from the medical community to increase prevention and early detection rates. Continue reading

Coming Soon…a special announcement on Monday

28 Feb
Image via Lymphedema Mavens

Image via Lymphedema Mavens

As I write this post, the actual temperature outside is minus three degrees Farenheit.  Those of us in the northeast United States and elsewhere are anxious to say goodbye to what has been one of the coldest Februaries on record.  But there is another reason to be excited about turning a page on the calendar. March is Lymphedema Awareness Month!

Lymphedema Awareness Month is the time for individuals and organizations around the world to jump up and down, waving their hands to spread the word about our condition to elected officials, the medical community, friends and neighbors.

In celebration of our month, I will be making a special announcement on Monday.  I am really looking forward to sharing it with you.  Stay tuned, or sign up for email alerts to be the first to hear the news.

Until then, so long, February.  Take your time coming back next year.

Happy Lymphedema Awareness Day

6 Mar

Lymphedema Awareness DayThere is nothing joyful about having lymphedema, but today there is reason to be glad.  Why?  Because today is National Lymphedema Awareness Day.

And now it’s official here in New York thanks to the dedicated team from the Lymphatic Education and Research Network (LE&RN).  LE&RN’s staff traveled to the state legislature in Albany this morning to be on hand as two resolutions were read: one to honor Connor Looby as LE&RN’s Youth Ambassador and another to recognize March 6 as Lymphedema Awareness Day in New York.

Since more people in the U.S. suffer from lymphedema than multiple sclerosis, AIDS, muscular dystrophy and Parkinson’s disease combined, it’s about time we got a day.  Maybe we should have asked for a month! Continue reading

Bringing lymphedema ‘into the light’

26 Feb

LE&RN LogoNext Friday night at a fundraising dinner the Lymphatic Education and Research Network (LE&RN) is honoring me for raising awareness of lymphedema.

As LE&RN’s executive director, Bill Repicci, says, “Although an estimated ten million Americans suffer from lymphedema, this disease remains in the shadows. LE&RN honors Britta for her ongoing efforts to bring lymphedema into the light, champion research and give this cause a voice.

Britta Vander Linden

Me blushing

*blush blush*

The dinner is on March 7th at 7 p.m. at the Putnam County Golf Course (about an hour and a half north of New York City) and will feature dancing, music and raffle prizes. Tickets are $75 per person (youth tickets $45 -12 and under) and can be purchased by clicking here or by calling (516) 625-9675. All proceeds to benefit LE&RN. Continue reading

Give to a Cause You Know

30 Dec
Connor Looby is LE&RN's Youth Ambassador and suffers from a rare lymphatic disease (intestinal lymphangiectasia) and lymphedema. Connor is only 7 years old, but he has joined in raising awareness of his disease and helped to raise funds to find a cure. Will you join Connor and make a generous end of year donation?

Connor Looby is LE&RN’s Youth Ambassador and suffers from a rare lymphatic disease (intestinal lymphangiectasia) and lymphedema. Seven-year old Connor has helped to raise awareness and funds to find a cure for the millions who are afflicted with lymphatic diseases. Will you join Connor in his fight and make a generous donation today?

If you are thinking about giving a charitable donation before the end of the year, I recommend considering the Lymphatic Education & Research Network (LE&RN).  This organization recently changed its name from the Lymphatic Research Foundation and expanded its mission after 15 years of providing hope, inspiration and progress to the millions of people who suffer from lymphatic disorders like me.

Simply put, LE&RN has done more to put lymphedema on the medical radar and to directly sponsor lymphatic research than any other organization of which I am aware.   Continue reading

Lymphatic Research Foundation: 15 years of hope, inspiration and progress

27 Aug

On Sunday, September 8th at 11 a.m. the Lymphatic Research Foundation (LRF) will host their 2013 Walk for Lymphedema and Lymphatic Diseases.  It will be at Eisenhower Park in East Meadow, NY.  Lymphedema Diary is  one of the sponsors of this worthy event.

Melanie Chaite (right) and me at the 2012 LRF Walk.

Melanie Chaite (right) and me at the 2012 LRF Walk.

LRF was founded the same year that I came down with lymphedema, so I feel a certain kinship with this organization.  It was founded by Wendy Chaite, whose daughter was born with systemic lymphatic disease and lymphedema.  Frustrated by the lack of available medical and scientific answers – to which readers of this blog can surely relate – Wendy quit her successful law practice and founded LRF to promote research of treatments and cures.  Wendy’s daughter, Melanie, is going into her junior year at New York University and was the keynote speaker at last year’s walk.  You can watch a video of her speech here.  It is a must watch and only about 5 minutes.

Continue reading