Tips

Throw Cold Water on Your Lymphedema

Cold Water Tip Showerhead

If you are living with lymphedema (LE), you know that heat is our kryptonite. It expands our blood vessels which increases the amount of fluid pushed into our tissues, straining our impaired lymphatic system and causing swelling. If we don’t manage this swelling our lymphedema progresses, causing more pain and creating more vulnerability to infection.

In my case, LE has affected my lower limbs. Since my first lymphedema symptom when I was 13 and my left foot began to swell, I adopted a strategy. This strategy has helped to reverse the impact of heat on my body and to slow the progression of the disease. My secret: I end all my showers with cold water on my LE-affected areas.

Continue reading “Throw Cold Water on Your Lymphedema”

Compression Stocking Tips, Tips, Videos

VIDEO: Battle Your Lymphedema with Toe Caps

Battling lymphedema is all about arming yourself with the right weapons to fight the disease.

Watch this video to find out how many butterflies toe caps earn on Lymphedema Diary’s five-butterfly rating system (The butterfly is the international symbol of lymphedema).

Continue reading “VIDEO: Battle Your Lymphedema with Toe Caps”

Motivational, Personal Stories

Their sacrifice, our duty.

20180526_184413Today is Memorial Day in the United States, a day in which we remember those who made the ultimate sacrifice for our country. Visiting the graves of some of these brave men and women at Arlington National Cemetery this weekend put my daily battle with lymphedema into perspective.

They paid the price. And so did their families.

This image shows the back side of the headstones where the name of the soldier’s spouse is engraved. I noticed that often, several decades separated the two before they were re-joined in this final resting place. Continue reading “Their sacrifice, our duty.”

Tips, Videos

VIDEO: To Dry Brush, or Not to Dry Brush? That is the Question.

Dry brushing is a detox method touted in many health and beauty publications for its ability to encourage weight loss, reduce cellulite and stimulate lymphatic flow.  But is dry brushing a good idea for lymphies?

Watch this video to find out how many butterflies dry brushing earns on Lymphedema Diary’s five-butterfly rating system. (The butterfly is the international symbol of lymphedema)

Continue reading “VIDEO: To Dry Brush, or Not to Dry Brush? That is the Question.”

Motivational, Videos

VIDEO: A New Year’s Resolution for My Lymphedema

As the clock strikes midnight this New Year’s Eve, it will mark the beginning of my 20th year of living, coping and, yes, thriving with lymphedema!  In this video, I share the resolution that will help me not just to survive, but to THRIVE, with lymphedema.

Happy New Year to all my fellow lymphies!

Happy New Year!

 

 

Compression Stocking Tips, News

Behold! Cyber Week Stocking Sale!

RedStockings
It’s the holidays, banish the dreaded beige! Cyber Week is the perfect time to try a new shade on for size (like these festive Juzo Soft Dream pantyhose 30-40mmHg).

While prying the latest dump of holiday catalogs out of my mailbox, a bright red postcard escaped onto the cold pavement. As I knelt down to pick it up, I could hardly believe my eyes – “Storewide Sale!” on all compression stocking brands.  The postcard was from my stocking provider, BrightLife Direct.  It was a Christmas miracle!

I have been purchasing compression stockings for nearly 20 years.  And never in that time have I been offered a holiday discount.

Behold, it is true. This week only – BrightLife Direct is offering 10-20% off discounts plus free shipping on all of their brands. There are no kickbacks coming my way – promise.  Just sharing the joy of the season with fellow lymphies.

THIS is the week to: Continue reading “Behold! Cyber Week Stocking Sale!”

Tips

Sexy (and Safe) Support for Lymphedema

Sexy is usually not a word that comes to mind when you think lymphedema. Compression garments. Pneumatic pumps. Bandages. Accessories like these are not likely to be spotted in Vogue’s Fall Fashion Preview.

But last weekend, I met a woman who can make any lymphie feel attractive – and improve their lymphatic flow – by starting with one of the first things they put on in the morning – a bra.

When you have lymphedema or are at risk for developing lymphedema, it is suggested that you avoid clothing or jewelry that restrains lymphatic flow. One of the biggest flow offenders? Underwire bras. The wires, intended to support and shape the breast, can dig into lymphatic vessels, encouraging the buildup of lymphatic fluid in a limb.

So what’s a fashion-forward lymphie to do?

One option might be to let the “girls” go free. At home on the weekends? Absolutely. At the office presenting in front of your staff? Not recommended.

Another option is a well-fitted, wireless bra. Finding a bra – any bra- that fits comfortably is a feat. Finding one without a wire that fits well and looks sexy? That’s gold medal worthy.

Meet the Olympic champion of wireless bra fitting – Ilissa Manes of Peach.

Ilissa
Ilissa Manes, Peach Personal Stylist, showing me Peach’s bralette line.

Continue reading “Sexy (and Safe) Support for Lymphedema”

Motivational, Tips

Summer and Lymphedema: Relax and discover

20160529_140119
The departure board at Dulles airport, waiting for my flight to Paris.

Memorial Day in America is a solemn occasion, but it marks the unofficial start to summer in the United States. As most Americans shed heavy clothes and head for the beach with their family and friends, those of us with lymphedema brace ourselves…and feel isolated.

Our enemy – heat – has arrived.  We scour the stores (unsuccessfully) for summer pants that aren’t cropped or in some other way designed to reveal our compression stockings and swollen legs.  We seek shelter in air-conditioned rooms.  We hope and pray that our “summer swelling” will go back down when the cooler temps return in the fall.

Lymphedema can make us feel like a prisoner in our own bodies.  Especially in the warmer temps.  This summer – try not to let it.

It’s hard to believe that growing up (pre-lymphedema), summer was my favorite season.  But I didn’t love summer because of the heat.  I loved it because summer was freedom.  I could do what I wanted with my time.  Be with my friends.  Practice with my synchronized swimming team.  Go out on dates. Go to the movies.

Continue reading “Summer and Lymphedema: Relax and discover”

Tips

A Snow Day….for Your Legs!

Freedom
Little me enjoying the white stuff after the Blizzard of ’79. Now THAT was a snow day.

Thanks to Winter Storm Jonas and the nearly 30” of snow he left in his wake, I and millions of others along the east coast have been holed up in our homes for 36 hours and counting.  

With nowhere to go and a new book awaiting me on my Kindle, I decided to give my legs a snow day too.  No compression stockings.  Bare legged.  A break from the normal 16 hours a day spent cooped up in tight, thick nylon-spandex, from toes to tummy.

What a glorious day!  Toes wiggling.  Thighs rubbing against cozy Cuddl Duds softness.  No pinching, pulling, or squeezing. Freedom!

Don’t wait for a “Snowmaggedon” to give your legs a day off.  If you are able, try letting  them “air out” for a day, a day of freedom, while still maintaining lymphatic flow.

Some suggestions:

  • Take a load off.  Limit the time you spend standing.  Keep your legs elevated above your heart as much as possible.  The natural effect of gravity will facilitate lymphatic flow.  When cooking and preparing meals, try sitting on a stool or chair.  Logically, spending significant time on your feet without compression is not recommended.

  • College Living Essentials Zero Gravity Perfect ChairKick your feet up.  Literally.  Find a chair that lifts your legs up while taking pressure off of your back.  Watch a movie or read a book while compression-stocking-free.

  • Hydrate your legs.   Pampering your skin is a luxury you don’t have while confined to compression stockings; so take advantage of this time.  Every few hours, apply lotion to your legs, working it in with upward strokes to encourage lymphatic flow.  And don’t forget your feet!  I recommend Eucerin Smoothing Repair for Dry Skin or Medi Night Creme.

  • sock2Wear cozy socks.  Let your feet experience what normal feet do – the luxury of soft fabric directly against the skin.  Choose a style of sock that does not bind at the top, cutting off lymphatic flow.  Diabetic socks are made with this in mind.  Non-binding socks made by Sockwell (pictured right), Soft Fit and Softop are available through Footsmart.com or Amazon.

Continue reading “A Snow Day….for Your Legs!”

Motivational

The Top 5 Things I Never Thought I’d Do with Lymphedema…But Did.  And So Can YOU.

Getting lymphedema feels like your GPS has led you to a dead end in front of a precipice that drops ten thousand feet. There’s nowhere to go.  No way out. And there’s no way to get back home.

You’re suddenly stuck in a body that won’t work the way it used to. You can’t do the things you used to be able to do. And you wonder how many other things you eventually won’t be able to do.

Having lived with lymphedema for 17 out of my 40 years, I have come to a decision: There is nothing I can’t do.

I have busted through my dead end. Jumped off the cliff. And I encourage you to jump with me.

There are so many things I thought I’d never be able to do when I got lymphedema, and yet I have done them.

Why didn’t I think I could do these things? Sometimes I let doctors and medical professionals put up the walls. Sometimes I built the barriers myself.

The fact that I have accomplished these things has given me hope.

Here are the Top 5 Things I Never Thought I’d Do with Lymphedema…But Did.  If I did them, so can YOU: Continue reading “The Top 5 Things I Never Thought I’d Do with Lymphedema…But Did.  And So Can YOU.”