And now it’s official here in New York thanks to the dedicated team from the Lymphatic Education and Research Network (LE&RN). LE&RN’s staff traveled to the state legislature in Albany this morning to be on hand as two resolutions were read: one to honor Connor Looby as LE&RN’s Youth Ambassador and another to recognize March 6 as Lymphedema Awareness Day in New York.
Since more people in the U.S. suffer from lymphedema than multiple sclerosis, AIDS, muscular dystrophy and Parkinson’s disease combined, it’s about time we got a day. Maybe we should have asked for a month!
LE&RN’s executive director, Bill Repicci, wrote a must-read piece about our current ‘Lymphedemic’, as he calls it, and LE&RN’s progress in championing our cause.
So many of Bill’s observations are spot-on. A stand out is that one of our challenges is “a medical profession that has too often instilled in patients the idea that there are worse things than lymphedema, and that suffering quietly is a noble approach.”
How do we overcome this hurdle? Lymphedema Awareness Day is a good start.